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Caregiving by Family and Friends of Adults Receiving Dialysis
Heather Beanlands, Martha E. Horsburgh, Susan Fox, Anne Howe,
Heather Locking-Cusolito, Karen Pare, and Christine Thrasher
This
study examined the activities of caregivers of adults on dialysis and
explored how these behaviors evolved over time. Using a grounded theory
methodology, interviews were conducted with 37 caregivers. Caregivers
shared a rich repertoire of caregiving abilities and activities that
were often supported by a strong knowledge base. Caregiving activities
fell into in five interdependent dimensions: appraising, advocating,
juggling, routinizing, and coaching. Caregivers also described specific
caregiving tasks, including dialysis- related activities, management of
diet, medications and symptoms, and personal care. These findings have
important implications for nephrology nurses in planning care that
acknowledges and supports the contributions of “lay” caregivers.
Heather Beanlands, PhD, RN,
is Associate Professor, School of Nursing, Ryerson University, Toronto,
Ontario, Canada. She is a member of the Great Lakes Chapter of ANNA.
Martha E. Horsburgh, PhD, RN,
was Dean, College of Nursing, University of Saskatchewan, Saskatoon,
Saskatchewan, Canada, at the time this paper was written, and is
currently Dean, Faculty of Nursing, University of Alberta, Edmonton,
Alberta, Canada.
Susan Fox, PhD, RN,
is ssistant Professor, Faculty of Nursing, University of Windsor, Windsor, Ontario, Canada.
Anne Howe, MHSc, RN, is Administrative Director, St. Joseph’s Health Care, Hamilton, Ontario, Canada.
Heather Locking-Cusolito, MScN, RN, CNeph(C),
was Nursing Practitioner/Clinical Nurse Specialist, Adam Linton
Dialysis Unit, London Health Sciences Center, London, Ontario, Canada,
at the time this paper was written.
Karen Pare, BScN, RN, is Research Coordinator, University of Windsor, Windsor, Ontario, Canada.
Christine Thrasher, PhD, RN(EC), NP,is
Assistant Professor, Faculty of Nursing Coordinator Primary Care Nurse
Practitioner Program, University of Windsor, Windsor, Ontario, Canada.
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