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Practice Issues in Nephrology Nursing

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Chronic Kidney Disease (CKD) Special Interest Group (SIG) Networking Session
Sally Campoy

Betsy King, MSN, RN, CNN, is Area Clinical Educator, DaVita, White Plains, NY. She is a member of ANNA’s Northeast Tri-State Chapter.

Debbie Miller, RN, CNN, is Regional Education Manager, Gambro Healthcare, Alexandria, VA. She is a member of ANNA’s Capitol Chapter.


The CKD SIG held its first networking session during the ANNA National Symposium in Las Vegas on April 2005. Two topics were discussed: (a) how to increase awareness of CKD, and (b) how to set up a CKD program. This will present the latter. 

Identify Goals for VA Clinic
I shared with the group my experience in setting up the CKD clinic at the Denver Veterans’ Affairs (VA) Medical Center. In 2000, I met with the renal physicians to develop a nurse-managed CKD clinic for persons with CKD stages 3 and 4.  I identified my goals for the clinic that were agreed upon by the physicians. These goals were:
  1. Promote referrals to the CKD clinic when the estimated GFR is < 30-35 ml/minute. These referrals came from the other renal clinics in which renal attending physicians, renal fellows, residents, and/or medical students had determined the cause of renal disease and established the diagnosis of CKD.
  2. Protect remaining renal function. Efforts to slow the progression to CKD stage 5 included blood pressure control, diabetes control, use of angiotensin converting enzyme inhibitors or angiotensin receptor blockers, slowing the rate of proteinuria, and avoiding nephrotoxins.
  3. Early recognition and management of complications. Blood pressure control, diabetes control, anemia, bone disease, nutrition, and electrolyte imbalances are assessed at each clinic. In addition, a hepatitis B profile is done so the immunization series can be started prior to dialysis or transplant.  Cardiovascular risk factors are also addressed, such as smoking cessation and lipid management. The medication list is reviewed at each clinic visit. Ongoing review of potential nephrotoxins is also reinforced as indicated in each clinic.
  4. Prepare the person for renal replacement therapy. Education sessions on treatment modalities are offered for each person and his/her support person{s}.
  5. End-of-life issues or palliative care. Some patients opt for no treatment. Discussion is done with the patient and his/her support person to review signs and symptoms of end stage renal failure and options for care, such as hospice. 

Why did we select the CKD management clinic instead of a screening clinic? The VA has emphasized the estimated glomerular filtration rate (GFR) rather than serum creatinine. The laboratory now includes the MDRD calculation along with the serum creatinine value on the lab report. The collaborative renal team conducted multiple education sessions with the VA primary care providers on the NKF guidelines of CKD and interventions in CKD stages 1 and 2. The VA also developed VA clinical practice guidelines for patients with CKD that included factors for early nephrology referrals.  Criteria included were having an estimated GFR less than 60 ml/minute, proteinuria greater than 1 gram per day, and uncontrolled hypertension. With these above interventions, referrals to the VA renal clinic have increased dramatically, making a screening clinic unnecessary.

Identify Key Team Members
Key team members were identified in the development phase. In the NP managed clinic role, I examine the patients, determine the clinical intervention(s), provide the patient education, and make the referrals. The NP works collaboratively with the renal physicians and involves them in the clinic as needed. I review my cases with my chief collaborating physician on a monthly basis to ensure all aspects of care are being addressed. The renal and/or outpatient dietician(s) and renal social worker are part of the team. The outpatient dietician and/or renal dietician teach diet, e.g. maintain adequate protein, carbohydrate counting for diabetes, low sodium, low potassium (if indicated), low cholesterol, and/or weight loss (if indicated). Either dietician is involved, based upon her availability. The renal social worker counsels persons with adjustment problems to chronic disease when self-care is compromised and makes dialysis referrals in the community. The social worker performs the social work evaluations for kidney transplant candidates.

Organize Education Program
The education program is done in two sessions. The first usually occurs during the clinic appointment, especially during the first visit to the CKD clinic. This includes the strategies to delay progression to CKD stage 5. By the time the person comes to the CKD clinic, he/she may have no idea of his advanced kidney disease or is overwhelmed with the information. Giving the person some strategies that can immediately be implemented will give him/her a better sense of control. Some persons will “see the light” and institute interventions to delay progression, e.g., improve medication compliance or quit smoking.

This information is reinforced at each clinic visit, such as “You did a great job getting your blood pressure below 130/80. How are you doing on your diabetes management in order to get the hemoglobin A1C goal below 7?”  The second class is a more formal education session done in a separate appointment. It reviews renal replacement therapy options with the patient and his/her support person(s). Either the NP or one of the dialysis nurses does this session. Since my background includes peritoneal dialysis, hemodialysis and renal transplant, I assess which modality will be the best option for the individual and will emphasize that option during the training session. For example, the best option for a blind 75-year-old with diabetes, living alone in a senior apartment building, may be in-center hemodialysis. So the education session will focus on hemodialysis, access and palliative care options. All options are reviewed in those patients who would be candidates for any modality.

Most consult services were identified during the planning stage. Some, however, were added as the clinic progressed or as new VA services were developed. Since erythropoietin and IV Iron were used more routinely, an IV infusion service was needed. The emergency procedures room would administer the infusion on an “as-needed” basis, but the patient volume quickly exceeded their ability to manage it and it was not emergent therapy. Patient volume for both chronic and acute patients precluded the dialysis unit as a suitable venue. With the development of the oncology IV treatment clinic that already included IV iron therapy, additional renal patients were incorporated into their workload. An injection clinic, staffed by LPNs, is consulted to give erythropoietin injections, teach the patient or family self-injections, and administer the hepatitis B vaccine series. They are available daily and usually able to administer the injection on the same days as the renal clinics.

The pharmacy has been instrumental in the development of several new programs. The first is a medication management clinic for the non-compliant patient or the unstable patient with diabetes, who needs aggressive control. The second is a lipid management clinic that works with patients with hard- to-control lipids. Both are consulted as needed. Vascular surgery service is consulted for early access placement. Consults are made when the GFR is less than 30 ml/minute in diabetics or in patients with proteinuria, and less than 20 ml/minute in non-diabetics or proteinuria less than 1 gram a day.  Biweekly meetings are held with the vascular surgery nurse clinician to review all patients needing an access and prioritizing access placement schedules. Interventional radiology is consulted for those early accesses that are not developing well. Monthly meetings with interventional radiology and the renal team review all procedures that were done and to decide upon an action plan. Finally, the transplant service is consulted on those patients who may be transplant candidates. As the VA renal transplant coordinator, I can initiate the renal transplant evaluation when the estimated GFR < 25 ml/minute. The patient is referred to the appropriate transplant center when the work-up is completed.

Barriers to Program
Over the past 5 years, there have been barriers to our referrals to the CKD program. Staff continues to use the serum creatinine instead of the estimated GFR. Reinforcement to change this practice is on-going. The distance to the Denver VA renal clinic is another barrier as our region covers several states in mountainous regions, making travel difficult. Unfortunately, there are some patients who have had little or no preparation or discussion about their renal disease, leading to shock upon learning of their diagnosis. Often, this can delay the needed preparations for early access until they are psychologically ready to proceed. There is also the “feel-good” syndrome (Crawford, 2005). Most patients do not have symptoms of CKD until the later stages, so why prepare now? It takes a great deal of education and gentle convincing for early access. Some patients will delay surgery until the need for replacement therapy.

Other problems have been encountered. The volume of referrals to the renal clinic has increased by greater than 10% annually. Additional renal fellow clinics were added. Since there is still only one NP in the renal clinic, the fellows have been trained to order necessary consults if there is a delay getting into the CKD clinic. An additional challenge has been surgeon ”buy-in” for “fistula first,” which was achieved by frequent meetings with them. On-going reinforcement of the VA directive for “fistula first” has resulted in 70% AV fistulas in the Denver VA dialysis unit. IV iron referrals have increased the infusion clinic burden volume tremendously. Requests are now limited to 1 or 2 days per week.

Finally, referrals to outside renal providers have also increased. The small dialysis unit at the Denver VA cannot dialyze all the patients in CKD stage 5. The social worker and nurse practitioner work with the patient to identify the dialysis unit closest to the patient and the appropriate nephrologist for referral.This involves additional time to make the referral and on-going communication to that provider until the patient starts dialysis.

Summary
The issue of reimbursement for NP is not an issue in the VA system, although it can be a barrier for the private sector. How to make this cost-effective was discussed during the networking session and will continue to be explored.

The nephrology nurse is in a key position to participate in CKD clinics/programs. By virtue of his/her nursing expertise in assessment, incorporation of psychosocial factors, and patient education, the nurse can play a pivotal role in successful management of persons with CKD.


References
Crawford, P.W. (2005), Lessons learned in an urban CKD clinic. Nephrology News & Issues, 19, 243- 249.

NIDDK. (2005, January). Chronic kidney disease awareness, prevalence and trends among U.S. adults, 1999 to 2000.  Journal of the American Society of Nephrology.


The Practice Issues in Nephrology Nursing department focuses on issues identified by ANNA's Special Interest Groups. Address correspondence to: Karen Robbins, Associate Editor, through the Nephrology Nursing Journal; East Holly Avenue/Box 56; Pitman NJ 08071-0056; (856) 256-2320, or by emailing her at kcr_nnj@yahoo.com. The opinions and assertions contained herein are the private views of the contributors and do not necessarily reflect the views of the American Nephrology Nurses' Association.


Copyright 2005, American Nephrology Nurses' Association. Anthony J. Jannetti, Inc., publisher. An iNurse Web site.