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Self-Management in Patients with End Stage Renal Disease: Exploring Domains and Dimensions
Roberta Braun Curtin
Donna Mapes
Dori Schatell
Sally Burrows-HudsonThe
management and appropriate treatment of chronic disease are ongoing
challenges in health care. As the population ages, the prevalence of
chronic disease can be expected to increase. Since by definition there
is no cure for chronic disease, controlling, minimizing, or managing
its negative effects becomes a primary goal. In the self-management
perspective, it is neither clinicians nor health care systems who must
accomplish the bulk of chronic disease management but rather the
patients themselves. Moreover, self-management has been shown to be
associated with improved outcomes. Self-management is comprised of two
domains: self-management of health care and self-management of everyday
life. Self-management of health care includes self-care activity,
partnership in care, communication, self-care self-efficacy, and
adherence. Self-management of everyday life entails
achieving/maintaining “normality” in everyday roles and functioning.
End stage renal disease (ESRD) is a chronic disease for which
self-management is particularly relevant. Understanding the components
of self-management may help patients and clinicians to embrace this
approach, to enter the mutual relationship it requires, and to maximize
positive outcomes for patients with ESRD.
Roberta Braun Curtin, PhD, RN,
is Research Director, Medical Education Institute, Madison, WI, and
research consultant, Life Options Rehabilitation Program, and is a
member of the Windy City chapter of ANNA.
Donna Mapes, DNSc, MS, RN,is
Adjunct Senior Researcher, URREA, Ann Arbor, MI, and Adjunct Assistant
Clinical Professor, University of California San Francisco, School of
Nursing, and is a member of the Chumash chapter of ANNA.
Dori Schatell, MS,is
Executive Director, Medical Education Institute, Madison, WI, and
Program Director, Life Options Rehabilitation Program, and is a member
of the Badger chapter of ANNA.
Sally Burrows-Hudson, MSN, RN, CNN,is
Director, Medical Affairs for Bone Care International, and Assistant
Clinical Professor, University of California at San Francisco, School
of Nursing. She is a Past President of ANNA, and is currently a member
of the Silicon Valley chapter of ANNA.
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